Resources for checking your progress in delivering personalised support at end of life

Resources for delivering personalised support at end of life

Publications

Publications resource icon

Section 1

The person

A Practical Guide to Delivering Personalisation – Person-Centred Practice in Health and Social Care
www.hsapress.co.uk/publications/books.aspx

Living Well – Thinking and Planning for the End of your Life
www.helensandersonassociates.co.uk/media/38837/livingwellweb-final.pdf

Section 2

The Environment

The Kings Fund Enhancing the healing environment (EHE) – Hospices brochure
www.kingsfund.org.uk/sites/files/kf/ehe-hospices-capital-grant-programme-brochure-2012.pdf

The Kings Fund Enhancing the healing environment brochure
www.kingsfund.org.uk/sites/files/kf/field/field_gt_document_link/enhancing-healing-environment-2012-brochure.pdf

Protected mealtimes & Patient safety (NPSA)
www.dignityincare.org.uk/_library/Protected_Mealtimes.pdf

Section 3

Friends, family, relationships

SCIE – Dying well at home guide
www.scie.org.uk/publications/guides/guide48/index.asp

‘Living without Emma’
www.amazon.co.uk/dp/0091923743

and ‘I want my mummy back’ both by Jon Nicholson
www.amazon.co.uk/Want-My-Mummy-Back-Familys/dp/0091923735/ref=pd_sim_b_2

Section 4

Person-Centred Practices

Habits for highly effective staff – making person-centred thinking a habit
www.helensandersonassociates.co.uk

Department of Health Guidance (2010). Personalisation through person-centred planning
www.dh.gov.uk

Section 5

Creating a person-centred culture

Person-centred organisations – what are we learning?
www.helensandersonassociates.co.uk

Web resources

Web Resources resource icon

Section 1

The person

NCPC (2006). End of Life Care Strategy –The National Council for Palliative Care Submission. National Council for Palliative Care, August 1st 2006.

www.endoflifecare.nhs.uk/assets/downloads/Social_Care_Framework.pdf

http://publications.nice.org.uk/quality-standard-for-end-of-life-care-for-adults-qs13

www.endoflifecare.nhs.uk/assets/downloads/pubs_Advance_Care_Planning_guide.pdf

www.nhs.uk/Livewell/Endoflifecare/Documents/Planning_your_future_care[1].pdf

www.endoflifecare.nhs.uk/tools/core-tools/preferredprioritiesforcare

www.patientexperience.co.uk/understanding-the-patient-experience/patient-experience-and-nhs-outcomes-framework/

Section 2

The Environment

The Kings Fund – Enhancing the Healing Environment
www.kingsfund.org.uk/projects/enhancing-healing-environment

Social Care Institute for Excellence (SCIE) Dignity – Eating and Nutrition
www.scie.org.uk/publications/guides/guide15/factors/nutrition/index.asp

SCIE – Dignity – Privacy
www.scie.org.uk/publications/guides/guide15/factors/privacy/index.asp

SCIE – Dignity – Social inclusion
www.scie.org.uk/publications/guides/guide15/factors/socialinclusion/index.asp

The Kings Fund – National End of Life Care Programme
www.endoflifecare.nhs.uk/assets/downloads/RTS_Environments_final.pdf

gov.uk – Guidance on patient-led assessments
www.gov.uk/government/news/guidance-on-patient-led-assessments

Section 3

Friends, family, relationships

What Matters Now – an online space for those with life changing illness to keep families and friends up to date
www.whatmattersnow.org/

Booklet about home care for a hospice patient
www.partnersagainstpain.com/patient-resources/Home%20Care%20of%20the%20Hospice%20Patient.pdf

Macmillan Cancer Support
www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Relationshipscommunication/Relationshipscommunication.aspx

NHS Choices
www.nhs.uk/Planners/end-of-life-care/Pages/End-of-life-care.aspx

How to Care for Carers via eHsopice
www.ehospice.com/uk/ArticlesList/Howtocareforcarers061113015427/tabid/7131/ArticleId/5217/language/en-GB/View.aspx

The new normal isn’t normal (illness changes everything) http://blog.chron.com/loveandrelationships/2011/12/the-new-normal-isn%E2%80%99t-normal-illness-changes-everything/

The needs of carers
www.healthtalkonline.org/Dying_and_bereavement/Living_with_Dying/Topic/1197/

Section 4

Person-Centred Practices

Michael Smull. A series of films on each person-centred thinking tool
www.youtube.com/user/helensandersonHSA

Think and Plan – a free website for people to use person-centred thinking online.
www.thinkandplan.com

Mary Beth Lepkowsky. A series of films on person-centred coaching.
www.youtube.com/user/helensandersonHSA

Section 5

Creating a person-centred culture

Michael Smull films for managers. ‘A Rock in a Pond’ and ‘Person-centred plans that make a difference’.
www.youtube.com/user/helensandersonHSA

Courses or consultancy

Courses or consultancy resource icon

Section 1

The person

Person-centred thinking tools at end of life
www.helensandersonassociates.co.uk

Section 2

The Environment

Person-centred thinking tools at end of life
www.helensandersonassociates.co.uk

Section 3

Friends, family, relationships

Carers courses – information link via NHS Choices
www.nhs.uk/CarersDirect/workandlearning/learning/Pages/courses-for-carers.aspx

Carers Trust – information on courses and support
www.carers.org/

Carers Direct
www.nhs.uk/Carersdirect/Pages/CarersDirectHome.aspx

Section 4

Person-Centred Practices

Person-centred thinking for managers – Transforming Teams
www.helensandersonassociates.co.uk

Section 5

Creating a person-centred culture

Transforming teams, Person-centred teams, Positive and productive meetings, Person-centred supervision, Person-centred risk, Person-centred recruitment.
www.helensandersonassociates.co.uk